Today, in The Autism Support Network there was an article entitled: The Meaning Of Advocacy by Jeff Katz. Jeff and his wife, Karen blog at Mission of Complex: Our Journey Through Hyperlexia about their 20 year old son Nate. Nate has been diagnosed with Hyperlexia, a disorder on the Autistic Spectrum.
I like Jeff’s style of writing and perspective. He is unapologetic, realistic and practical. He admits to his own faults without being self-condemning. He also rejoices in his son and family’s successes without being unrealistic as to what these successes mean.
I particularly like the way he talks about advocacy. Advocacy is, as Jeff says, “One of the first, and in retrospect most important, lessons that [parents] learn”.
Jeff and Karen clearly keep their son’s improvement as the primary concern in everything. I think this is wise. It helps keep from getting bogged down in the emotional reactions to the often painful and embarrassing situations of raising a child on the spectrum. He keeps this in mind, even when dealing with himself and sorting through valid concern verses unfulfilled personal expectations.
I have added this blog to my regular reading list.